For many of you that read my blog, you know that I am paralyzed from the shoulders down and live in a long-term care facility. My permanent aide of the last five years has picked up different responsibilities so others are having to fill in. There has been very little consistency in the aides that are now taking care of me over the three shifts that have to be covered. It’s difficult to have someone different every day see me in ways that make me feel super vulnerable.
These changes in my caregiving routine have caused me a lot of insecurity and anxiety. These feelings are amplified during my nightly battle with insomnia and have caused me to experience a wicked depression. Some mornings I feel like I just can’t breathe and it’s difficult to focus on doing the right things.
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Diary of a Quadriplegic 