I am sending this to all my blogging friends asking for your prayers.
Over the last three weeks I have been alternating between the ICU and the step down unit at Duke. I am still in the hospital. What we thought started as a septic UTI, turned out to be aspiration pneumonia. Because of my paralysis and muscle atrophy, I don’t have the lung strength to cough things up, and aspirations are a regular occurrence for me. Because my respiratory system requires more care than most long-term facilities can give, and I can’t continue living in the hospital (although I feel like I’ve moved in permanently), we are trying to find an appropriate home for me. Today or tomorrow I will be meeting with the pulmonology team to see what our next steps are going to be. One option is to get a trachea which would require a couple of more weeks in the hospital. As you can imagine, that is my least favorite route to go; but if that will get me out of here and into a normal living situation – well, as normal as can be – then I’m all for it. Without sounding like I have self-pity and playing a scourge on a violin, the last three weeks have been very difficult physically, emotionally and spiritually. I haven’t thrown out my faith but it’s been difficult accepting everything that’s happening. Thank you in advance for all the responses and well wishes I will get to this post. I may not respond quickly but please know I appreciate all of you.